Adam has had some bowel issues lately. So we had to go for another colonoscopy this past Thursday to see what the problem is. Turns out he has ulcerative colitis with an umbrella diagnosis of IBS. So after his $800 medicine we already paid for and tried that didn’t help now he has a $900 medicine that he needs every month forever apparently to deal with this issue. Oh my word! So help me! Why is it so expensive? Anyway, we are trying to go through a Canadian pharmacy and see what they can do.
Then the day after that holabaloo he went for his treatment for NMO, nearly 8 hours of infusion and 1 gram of retuxin. He has now been in bed for two days. That is to be expected.
We are grateful he does as well as he does. We are grateful for the many miracles and healing we have seen. We try to see the good and not whine too much. I just like to document our life, the hard parts sometimes too.
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