FHE at the temple

We earned our temple trip since we filled the lamp as a family this month! It was a great night together walking around the temple. 

An Inspired program!

After meeting with our bishop he felt strongly that he needed to help us with our current situation. Adam has been out of work for about a month just for his diagnosis, treatments, and hospital stays. Then he has his Retuxin to go (takes 4 weeks) then waiting and no work or stress for awhile til doc says it's ok to go back to work. So with that and our newly inquired lifetime of medical bills Bishop and I visited and he is paying our mortgage and giving us food orders. I never thought this would be us, never. Wow, is it humbling! We hope to just do this for a couple months, we will see how Adam does, if he regains his vision and walking ability and overall ability to function enough to return to work. That's a scary thought but a real one. I have learned that this church program is surely inspired. It helps many in crazy dyer circumstances like ourselves. 

I think they are happy Daddy is home!

And it's out!!!!

Today Adam had his last plasmaphoresis treatment. They are done cleansing out his bad NMO antibodies. We call it his high price oil change. Anyway, a little after noon the nurse, Mirela, who was our favorite, got to be with us the last day. She removed the stitches to the cathedar in his neck that was used for the  treatment. Here is a picture of how long it is. 

Now we are resting with oxygen. You have to lay flat with pressure on it for 30 minutes then after that see how it goes. Well, Adam is having severe chest pain so it's been almost 2 hours and we are still resting. But, that is okay we want to make sure he is strong enough to leave. 

During his hospital stay he has had lots of visitors. We are grateful for all of them. It helped us feel loved and helped time pass. 

Jared, Laura and her family, and my Aunt Michelle and Uncle Rod even stopped by but I didn't get a picture. Oops. 

Thanks for all the love and support through this hard time. I saw this and loved the message. We are doing our best with the trial we have been given. This NMO has and will continue to change our lives. 

Tomorrow we go to Dr. Foley and it's Adam's first all day infusion of Retuxin which is his maintenence drug he has to get every 6 months. It's supposed to be a hard infusion for people to handle so we pray it's okay and we can at least get home tomorrow night. 

We filled our lamp!

This month we learned about the 10 Virgins for FHE the first week. We talked about how we can fill our lamps so we can be prepared for the Savior. All month as a family we have worked toward filling it and our reward is going to the temple grounds to see and touch the temple as well as feel the spirit of that Holy Place. This past week the kids filled the lamp up! As soon as we are out of the hospital that will be our first FHE activity.

We have all tried hard to be more Christlike, read family scriptures, say our prayers, go to church and just try our best. For me, as Mom, it's made a big difference to praise instead of criticize or point out behaviors we shouldn't do. Instead I simply ask, "is that what Jesus would do? Will that get us a scoop in our lamp?" Or, "Great job for making a good choice, you earned a scoop in our lamp." It's been very happy to see how the kids responded to this. I love when life gives us yummy moments. 

Happy Fathers Day

This year it was a visit in the hospital but we made it work and had cake. We love you hunny! You are the best Dad to our kids. 

Plasmapherisis at IMC

Adam will be in hospital for 5-7 days for treatment for his NMO disease. We hope it goes really well this works for his vision and legs in his nerves. This is kinda like dialysis whet rthey pull his blood out, filter out the bad antibodiesc and put it back in without the one that are attacking his body. After that we will be doing a maintenatince drug which will need to be done in the hospital, it's an all day infusion of Rituxin, (can make Adam really sick) and they do it once a week for a month every six months just to prevent future flare ups. Right now it's all so scary but we are praying and have great faith a miracle will work and after 3 week of blindness in one eye he will at least be able to gain enough vision to work and function. Here he is with a cathedar in his neck for the treatment. We are going to visit at the hospital today for Fathers Day. Hopefully the kids bring some sunshine to his day. 

Cucumbers and Ranch

Rachie just asked for cucumbers and ranch for breakfast. What 3 year old does that?  Love her! 

Fun hospital stay and more!

Adam has been diagnosed with an autoimmune disease called NMO. Similar to MS but different. This will be a lifestyle change for us. Right now Adam had to spend two days at IMC hospital in Murray for all the testing to diagnos and to start 1,000 mg of steroid via IV. More details later  and pictures  below . 

Ice cream in the summer time on the porch!

Curbing!!!

Our summer yard project is coming along. Today curving was done up by the house. It makes a HUGE difference! Next sod! 

She is cruisin!

At easter she couldn't ride at all, today she is a total pro! We are so proud of her! Remember Rach you can do anything you set your mind to and work at. 

Splash Pad